Category: Let's talk
Mine is Retenitis Pigmentosa
When I was young I was given an eyeRectumy so I wouldn't have such a crappy outlook on life. <smile>.
Seriously, mine is ROP retinopathy of prematurity, used to be called RLF for something I can't spell.
Bob
This topic has been on the boards in the past.
My vision problem is that I can't see a damn thing.
Becky, open your eyes and who knows?
We'll be praying for you.
Bob
I am not sure what mine is. Something to do with nerves. I wasn't born blind well that's what I am told but I was born a month early.
Bob, I do believe your jealous. Cats eyes work better at night. As for me, I'm not going to try to spell this, so I'll say it in english. I have a very small eye, and none of the parts formed properly. I was born that way, and there's nothing in the other socket.
Lou
I have lebors, which I used to think was pretty rare, but am finding out is not as rare as I was led to belive! Lebors is a distruction of the retna at birth!
Jim, its amazing about eye pathology. Maybe some of these diseases are rare in the general population, but when it gets up close and personal, it doesn't seem so rare anymore. Its almost like disabilities are a magnet atracting like molecules or something.
Lou
Lou, is it microophthalmia that you have?
I was born with glaucoma which I thought was rare, but I have talked to a couple people here on the zone who were also born with glaucoma. It generally is something people get as they age.
That's actually quite ironic Becky because I was going to post here saying that I have the same vision problem as you, namely I can't see. But then just read your last post to see that you were born with glaucoma which I was too. I lost both my eye's before the age of 10 because of the pressure problems it cause me and now have lovely glass replacements.
Dan.
Okay, I kno this is going to be spelt wrong, but I have retna blastomma. In other words, I had canswer behind my eyes when I was born, and I lost both my eyes, and some of my optic nerves. Lucky for me, the canswer hasn't come back. I now have eyes made out of the stuff that fulse teeth are made frome, so I can take them out if I need to.
Hi, all. I also had retino blastoma, cancer in the eyes. Both of my eyes were removed when I was an infant, only four months old. I underwent radiation and chemotherapy to kil the cancer that remained on my optic nerves.
I was born with damaged optic nerves. the doctors told my mom the name was so long even they couldn't pronounce it. there are jellies in the eyes that are suppose to harden after a couple of week so the baby can se, but mine just didn't, and i suspect if a doctor were to examine them, they're probably as soft as they were when i was born.
wonderwoman
I need glasses, Unable to put stuff in my eyes so I can't wear contacts. someday I hope I can get laser eye surgery.
I, too, had retinoblastoma in both eyes. Both eyes, as well as the optic nerves were removed when I was about ten months old. Thankfully, the enucleation (removal of the eyes) was enough to stop the cancer and I didn't need any radiation or chemo.
Oh, and to Becky, you almost sounded annoyed about this topic having been on the boards before. I guess sometimes it's easier just to start up a new topic than it is to fish out and resurrect an old one. Besides, for Zoners like myself, who've been on here for only months instead of years, this kind of thing is interesting.
Becky, you're right about the eye condition, only there's a unilateral after the micropart. Not that the name is long, but I was afraid of exceeding the character limmit.
Lou
Hey Gina, I too have retinitis pigmentosa, small world. I sure would hate to paint it though
I have ROP, which use to have a very long name. I can pronounce it, but I can't spell it I don't think. It's now known as Retinopathy of Prematurity.
I have Retinitis Pigmentosa. Usually with RP, a person gradually loses their sight as they age, but with myself, I was born blind. It's rare for that to happen, but it happened with me. Because of the RP, I have also developed cataracts, and I need to get those removed.
R O P and microophthalmia, here.
I totaly agree with you sister dawn,
when I was new, i brought up old topics as well, because they may have been old to people who have been on the site for a long time, but they were brand new to me. I like any topic I can participate in, and this topic is universal to all blind people, because it has to do with what vision problem we have, or what made us blind. There are a lot of topics i can't participate in, like college, because I chose not to go to college, and even if I had, it wouldn't apply to me, because if i'd had any college years, they would be in the past, because of my age, but this is su cch auniversal topic for all us blind folk, young or old, not that I'm all that old, lol, but cedrtainly a great deal older than most on here.
wonderwoman
I didn't mean to offend you sister dawn. And wonderwoman, my point was not that this is an old topic, my point was that just recently I saw this same question posted by another user in the health topic board. Again Dawn, I meant no offense.
ROP is mine.
You didn't offend me, Becky. I wasn't mad. Just commenting back at you. Smile. All's good.
Rop
I didn't hav to have any keemo with my retna blastoma either, cause they got it all. I'm just glad that I found some other people that have the same eye condition as me, not that I thought I was the only one. I just hadn't herd of anyone else is all.
I have Lebers congenital amerosis.
Troy
Amazing how many ppl who post to this board have eye problems, compared to the general population I mean. I shre the can't see a damn thing, general issue, some doctors blame it on retina blastoma, I blame it on bad replacement, sure prosthetic eyes turn the Roman Battlemask on, although not useful tidbit of info for me, but I have to say it's just not as convenient as perceiving light with the suckers.
To Lou, you and I have the same eye condition it's called in medical terms microphthalmia. Spelled m i c r o p h t h m i a it's a condition meaning one or both eyes are abnormally small and mal developed. I wear prosthetics in both eyes, one is a shell the other is a full eye. Do your eyes drain a lot or have a lot of discharge or frequent eye infections (conjunctivitis)? I have this and have to take meds from time to time.
Oops I messed up on that microphthalmia word I almost had it but spelled the last few letters wrong. it's m i c r o p h t h a l m i a.
This condition is also known as anophthalmia, spelled a n o p h t h a l m i a.
To Medical Queen, my right eye socket does drain. I wear glasses to protect what's left of my left eye after cataract surgery in which they removed a good lot of other tissue. I forget sometimes to check the right lens for gunk from the drainage. Thanks for that spelling. Spelling never was my strong suit with english, let alone medical terms.
I'm another one with ROP. I still have both my eyes, but they're really small. I've been wearing prosthetic ones since I was eight.
I also have ROP, and very small eyes. They haven't grown since I was three or something.
I have glaucoma with very high pressures. I can see light, color, shadows and stuff like that but I can't tell shapes from other shapes.
Basically with me, everything with the acceptions of my chornea, optic nerve and maybe part of my retina has packed in in the one eye I have. I just have an eye lid as my right eyeball didn't seem to've developed when my left eye did. This is called anophthalmea. The eye lid though, is too small to have a glass eye fitted without an expander.
Retinopathy of prematurity. Means that I lost my sight just when I was born 3 months early. Try saying that 3 times drunk!
Mya.
i have lebers disease, have only been blind since the age of 16 and i'm 18 now, i lost my sight very suddenly over the space of a few months. i have no central vision and very blurred peripheral vision which doesnt leave me with a lot. having this sort of thing happen so quickly does make you feel isolated and loney which is why i love to make any friends i can, i'm currently studying at rnc the royal national college for the blind in the uk too which is helping me to get my independance back again
I'm a retinoblastoma kid to. lost left eye at 6 months, and then under went kemo and radiation and chriotherapy till I was 2 and a half when they took the left as well.
nice to meet the rest of you. and b, thoughs kemo drugs are addling your brain for someone who doesnt' know you that message was absolutely randem hehe I loved it.
Retinopathy of Prematurity, stage five
lebers... cant spell the rest of it, but i think its where the pins and cones of your retna are there, but not turned on properly... and i thought it was rare too until i went to camp and there were five other people there that had it
rop
My vision problem is... Glaucoma!
That and Macular Degeneration seem to be the most common ones I hear about.
i think that RP is the most common
I have something called criptalthalmia. I have no idea if that's spelled right but it sounds right with speech. Basicaly it's when your eyelidds don't divelip right in the woom, there there but the mussles and your jeneral eye hardware don't work like they should. I have been able to have sergerys to give me light perseption, but the general knolege of all conserned says that I will luze what little vishin I have eventuly because my cornia transplant will get old, and it's happening all reddy.
This is a rare condition so not much is really known about it.
Does anyone else have this?
I have septo optic dysplasia, or optic nerve hypoplasia. This means that my optic nerves are underdeveloped. I'm totally blind.
My eye condition
I'm partially sighted due to Optic Nerve Hypoplasia, which means that my optic nerves weren't developed all the way. I can still see with one eye, so, it's better than none. I can manage to get around places with out using a cane, but it's hard for me to see far objects or street signs, so that's the reason i can't drive. I'm near sighted, but i can still read print at font 12. I don't know how to do braille or to use jaws, and any other computer assistive program, in short, i do every thing without help but there were some people who were willing to help, I'm really fortunate to have those friends, so it's all good. My condition is not noticeable, and i really appreciate it, at least i can still see.